This video is part of an online advocacy campaign that asks Canadians to tell their government to cover the new drug Orkambi that significantly helps people with cystic fibrosis but is currently unaffordable for most who’ve been prescribed it. The idea came from the insight that having cystic fibrosis often gets in the way of everyday life, and if you could afford the care you need, your quality of life would improve allowing you to do the things that are important to you.
Philosophy
An advocacy campaign to get people who value every moment they get to share with someone with cystic fibrosis to give their loved one a better life by showing that every moment counts.
Problem
A new drug for people with cystic fibrosis that has been recently approved by Health Canada, ORKAMBI, could benefit around 1,550 Canadians above the age of 12. Doctors are already prescribing it to those who need it but sadly, it has not been approved for coverage and would cost the person with CF and their family over $80K per year.
Result
This online campaign is still ongoing. Results soon.